Crescent Cove in the News!

Crescent Cove hosts its home dedication ceremony on May 7, 2017!
See the WCCO segment here

Crescent Cove’s support for families will expand to pediatric hospice care
See the MINNPOST article from February 8th, 2017 here

A peaceful place for children to live – and to die
Crescent Cove’s pediatric hospice and respite home in Brooklyn Center will be the state’s first. See the February 6, 2017 Star & Tribune article here

Crescent Cove on CCX Cable Channel 12
On February 6, 2017 Crescent Cove Founder, Katie Lindenfelser, appeared on CCX Channel 12 News. The Crescent Cove feature can be found here. Thank you Cable Channel 12 for sharing our goal to open the hospice on Twin Lakes by the Fall.

Crescent Cove on KTIS Radio
Crescent Cove Founder, Katie Lindenfelser, was featured on KTIS and Faith Radio on June 18th and 19th, 2016. If you would like to hear the complete interview, please click here.

Crescent Cove Featured in Star Tribune
Crescent Cove was featured in an article in the Star Tribune on 12/5/15. If you would like to read the article on their website click here.

Continue reading Crescent Cove in the News!

This is not a luxury facility. This is a basic necessity. -Nita Killebrew

My passion for children’s hospice came into play in the late 90’s when Harmon was a spokesperson for adult hospice.  Harmon and I both were champions of hospice due to his critical health needs in the early 90’s when at-home hospice was primarily for AIDS patience.

Children have always been the primary focus in our life as Harmon and I have 9 children and 21 grandchildren and 7 great grandbabies. One of our granddaughters has a life-limiting condition so we both saw the need for a child- specific facility. The thought of a child with a life-limiting illness without a child-specific facility for family and child respite and end of life care was emotionally inconceivable for the two of us as parents and grandparents.

When Harmon was released to hospice for his end-of-life home care, he wanted his fans and friends to know that he was at peace and very comforted with the knowledge that he could take advantage of the services offered.  Hospice was a God-send for us.  For five months as his condition escalated, the only thing he asked for was for me to “hold him.”  As any end of life caretaker can attest, those final months are a blitz of appointments, IV’s, feeding tubes, etc. and that does not include the regular needs and responsibilities of housekeeping, grocery shopping, cooking, running a business and foundation, and public PR.

“Just hold me, Nita.”  I’ll never forget those words.  “Just hold me.”  When hospice came into our home, I finally could just stop everything else and “just hold” him.  I cannot fathom a child going through this and asking his parents to “just hold me mommy & daddy” and they don’t have the opportunity to do that.  A child-specific hospice facility is so important to the comfort and care of these children.  It’s critical for these families to have respite and support during these difficult months & years.  Their hearts are already being sucked out of their chest with a straw and they are overwhelmed with not just this child, but all the other day to day responsibilities of life, including: working full time jobs to maintain health care, caring for other children in the home, and getting their child the physical therapy and health care they need.  It’s overwhelming.  We need Crescent Cove’s in every state, in every city, in every community.  This is not a luxury facility.  This is a basic necessity.

Written by Nita Killebrew

Nita Killebrew with TC Bear

 

Karsyn’s Krusaders gift release

PRESS RELEASE

Crescent Cove Receives $2,500 Gift from Karsyn’s Krusaders

Support for care and services needed by children facing shortened life expectancy

Minneapolis (April 22, 2016) – Crescent Cove, a non-profit whose mission is to support children who face a shortened life expectancy and their families, today announced a $2,500 gift from Karsyn’s Krusaders.

The gift will help Crescent Cove provide special therapeutic services needed by families facing one of life’s most difficult journeys, even as the non-profit raises funds to build the Midwest’s first residential hospice and respite center specifically for young people.

Currently, none of Minnesota’s 82 licensed or certified hospice programs specialize in pediatric hospice care. Each year thousands of children and their families lack the specialized physical, spiritual and emotional services that can be of benefit at end-of-life.

“Therapeutic services are some of the most important components of end-of-life care,” said Katie, founder of Crescent Cove. “The gift from Karsyn’s Krusaders will help us to provide these services for families and to meet the needs that they have right now at this very moment.”

The gift from Karsyn’s Krusaders will enable Crescent Cove to help families cover the costs of such services as massage therapy, healing touch, reflexology, music therapy, spiritual care and creative arts, as well as respite time at retreat centers with other families facing similar challenges.

About Crescent Cove

Twin-Cities-based Crescent Cove offers child- and family-focused respite and end-of-life care to children with a shortened life expectancy. It is currently raising $10 million in funds to build the Midwest’s first hospice care and respite center for these children and their families. Meanwhile, it is providing support to help connect children and families in need with community services that can support them. Crescent Cove is a non-profit 501(c)(3). For more info, please visit www.CrescentCove.org.

About Karsyn’s Krusaders

Karsyn’s Krusaders is a not-for-profit 501(c)(3) charity started in 2010 by Andy and Jessica Miller to raise money and awareness of cancer, with a focus on childhood cancer. Karsyn’s Krusaders is a dirt track automotive racing-based cancer charity that works with drivers, race tracks and race fans across the country. The charity’s motto, “Kickin’ Cancer’s Butt One Lap at a Time®”, the logo and name is based on the Millers’ daughter Karsyn who was diagnosed with high risk leukemia at age 3 in 2008. Karsyn was successfully treated and today is a vibrant little girl who continues to be the inspiration for the charity that helps children and their families across the country.

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Contact:    Katie Lindenfelser, Founder, Crescent Cove, 952-426-4711, katie@crescentcove.org

 

For the full press release click here.

How to help families in crisis

When my daughter, Lizzie was born five years ago, she arrived via emergency c-section, blue and lifeless with a then undiagnosed life altering syndrome. Those days remain a blur of gray and black in my mind, a haze of grief and disbelief. I was drowning in pain, unable to comprehend what felt like the end of life as we knew it. In a way, our previous life did end that day, but a new one began. Lizzie fought through 30 days in the NICU, through her arrival at home, through meeting her older brother and two subsequent sisters, through birthday after birthday, hospitalization after hospitalization, therapy after therapy. Here we are today with a five-year-old Lizzie, filling out kindergarten applications and making tentative plans for the near future (something we have rarely had the courage to do). We know our time with her is limited. We live in an ambiguity that at times feels transcendent and at other times, torturous.

The grays of those early days have softened, but there are still very dark days. I was a complete mess, unable to get out of bed at the beginning of this journey. Our friends and family offered to help; loving, sincere offers of help, but I couldn’t accept any of them. I just couldn’t. I could barely breathe. The offers were too much for me to process. Aside from that, I felt like it was my responsibility to navigate this. She was mine, my responsibility, no one else’s. I wanted to close off and white-knuckle and put my head down and get through this. And I did for a while, until I couldn’t anymore. Until I broke. Until the stress and reality were too much. Then I admitted I needed help, but it was still hard to accept. I’ve gotten better at identifying what I need and asking for help. There are still times I struggle with guilt over inconveniencing friends and family. It feels like I’m always the one who needs help and I can rarely offer the same help to others, because of Lizzie’s medical situation. It feels like I’m running at a deficit, constantly withdrawing from the “help bank” and rarely making a deposit. If you know a family like ours (and I bet you do), it can be hard to know how to offer help or what is helpful. Here are a few guidelines that make it easier for me, personally, to accept help.

  • Identify what kind of help resonates with you

    Do you love kids? Offer to take siblings on a park outing or out for ice cream. Are you a neat freak? Offer to clean a bathroom or pick up and return a load of laundry. Are you a good listener who loves coffee? Take Mom or Dad out for coffee and just listen. Do you have pretty stationery? Write a note and drop it in the mail. Are you a great cook? Bring a meal. Do you have a vehicle? Offer to drive to appointments or pick kids up from school or activities. Help in a way that makes you happy.

  • Be very specific in your offer

    Include a concrete time frame when you offer help and ask in a way that makes it easy to accept. Families in crisis are swimming in a sea of late nights, medical crises, guilt and difficulties. Our brains are foggy, we can’t handle one more decision and often don’t know what we need. We are focused on getting through the day. Make it easy for us. Would Tuesday or Wednesday work better for a meal? Can I take you for a coffee Saturday afternoon? Would it be helpful if I cleaned your bathroom? I am free on Monday after three or Tuesday morning. A specific and concrete offer helps us say yes, even when we feel guilty or overwhelmed.

  • Remember that everyone needs help.

    I do. You do. That one mom at school that always wears actual clothes to pick-up, she needs help, too (no, seriously). We aren’t here to fight through this alone. Why do we do this to ourselves? Torture ourselves over not being able to do it all, all the time? Lie to ourselves that we are the only ones who don’t have it together? No one has it together all the time and if it seems like they do, they are lying by omission. Needing help is not shameful. It’s how we are designed and it took years for me to realize that. We need each other. We need to help others and be helped.  What would be shameful would be to perpetuate that lie and act like I don’t need help or to shut Lizzie away so that only we get to know her beauty and light and learn her lessons. Our struggles are gifts to ourselves and the world. SHARE THEM.
I’m not completely sure why we are here on this planet, but I do believe that a great part of that reason is to lessen the burden of those around us, to share in their pain and grief, their joy and elation and their day-to-day struggle like one big family. There is so much beauty in all of that. Shared grief, shared joy, shared journeys. So beautiful. My family is not that different from yours. We deal with things people don’t like to think about, we sit in sorrow I hope you never know, but, essentially, we are just us. Just a family, six people making what they can out of what we have. A family. Your family. So, help a sister out.

 

“Why do children need their own hospice?”

“Why do children need their own hospice..?”
I have been met with this question several times over the years while Crescent Cove has fueled a special fire in my heart.

Until May of 2010, I would’ve been one of those people asking this innocent question.

Because of one incredible young woman, my life’s course changed completely. Maryah Tift was my better half. Having battled Ewing’s Sarcoma since being diagnosed at nine, she was no stranger to mustering up immeasurable strength. It wasnimage1(1)‘t until she was nearing the end of her earthly journey that I realized just how strong she was. Maryah spent the remainder of her courageous battle in an adult hospice. The walls possessed no lively art. The feel was somber and quiet. This was certainly no place for the most exuberant and fierce person I will ever have known. But because homes like Crescent Cove are not widely available to the 50,000 US and 700 MN infants, children and young adults who will pass away annually from a life-limiting condition–this was where her battle with cancer came to an end.

The United States is the only leading industrialized nation where pediatric care falls short. Not only are we falling short, but we are several years behind the United Kingdom when it comes to pediatric palliative care and hospice.

This brings me to my mission. Maryah and I bonded over our immense love of things that sparkle. She was there in the front row when I won Miss Minnesota and I know she will be right next to me as I compete this weekend to bring Crescent Cove and pediatric hospice to the core of our nation’s focus. It is an honor to work alongside in the most intimate of ways with Crescent Cove and our sister homes across the country to make sure that soon, no child will spend the rest of the life they are living being constantly reminded that they are leaving this world way too soon. To make sure that Mom can stop checking the monitors and just hold her child. That siblings can cherish sacred time together and worry about nothing more than laughter and creating memories.

My mission is not complete without the incredible founder, staff and volunteers that service thousands of families in Minnesota ALONE.
I speak directly to those who have found solace in Crescent Cove for their children: I am in awe of you! We will not rest until you and your children have a place to.

I thank Katie, Rachel and Zach (Maryah’s parents) for allowing me to be a part of her legacy and continue the discussion and show that there are living breathing answers to that question that so many have: “Why do children need their own hospice..?”

Because every child deserves to spend their life living.

Promising the moon,

Morgan Bredde

Mrs. Woodbury International 2016

morgan