Thank you for the loving care that you provide to your child and family. If you are a parent or family caring for a child with a shortened life-expectancy, we want you to know that we extend our love and support to you. We can imagine that our mission is not one you ever wanted to consider as a need in our community. It is your dedication as a parent or family member that encourages us to continue working to fulfill our mission to support families so that you can make every moment count.
As we work to open a residential children’s hospice and respite home, we are also currently providing family support services. Through referrals from pediatric palliative care providers in our community, we are providing some respite experiences, integrative therapies and connections to facilitate support from other families.
Crescent Cove will open a home in fall 2017 where families can stay for respite or end-of-life care. In the meantime, Crescent Cove is covering the cost for a number of families to stay at Faith’s Lodge in Danbury, Wisconsin on weekends allocated for families currently caring for a child with a shortened life expectancy or who is seriously ill. Typically, Faith’s Lodge is available as a retreat location for bereaved families. If you or your family is interested in this experience, please talk to your child’s clinical team. Clinicians caring for children who have a shortened life expectancy may refer eligible families to Crescent Cove to stay at Faith’s Lodge for a respite weekend.
The weekends available in 2017:
Integrative therapies such as massage therapy, healing touch, reflexology, music therapy, creative arts, spiritual care/chaplaincy and counseling support will be provided to children and their families when they stay at Crescent Cove’s home once it is built. These are services that are often not covered by a child’s medical health plan, yet can provide essential comfort and relief from pain and anxiety along the journey.
In 2014, Crescent Cove began covering the cost for families to receive some of these services from designated professionals in the pediatric healthcare field. In 2015, we met our goal to support 30 families caring for a child or children with a shortened life-expectancy. In 2016, Crescent Cove served 75 families in Minnesota. If you are served by a clinician at a pediatric healthcare organization in the Twin Cities and are interested in this offering, please talk to your child’s social worker, nurse or doctor who may refer you to Crescent Cove.