Successful Pediatric Palliative Care Symposium October 16-17, 2015

Click here for the symposium program with speaker bios

Click here for the Symposium brief and to review the discussion points

Families, clinicians, and policy makers, came together to advance support for kids and families facing life threatening illnesses. Crescent Cove is dedicated to addressing many of the areas of support needed as they continue to work toward building the first residential children’s hospice and respite home in the Midwest.

Hal Siden, M.D. at Canuck place, children’s hospice in Vancouver Canada, and Jan Aldridge, Psychologist at Martin House, children’s Hospice in England, shared wonderful insight from their work with families and encouraged our efforts here in Minnesota.

Friday, October 16th

1-1:30pm – Welcome & Introduction of Crescent Cove

Emcee, Dr. Jim Rice

1:30-2:30pm – Session 1 — Family Panel

( Four families will share their diverse experiences caring for a child who is medically fragile. • Wilson Family • Goodspeed Family • Martindale Family • Shu Family — Moderator: Jason ALbrecht, MHA, CCLS )

2:30-3:30pm – Discussion

3pm-3:15pm – Break

3:15-4:15pm – Session 2 — Policy: Finding Resources and relationships for supportive policy

(Keynote speaker: MN State Representative Nick Zrwas — Moderator: Richard Forschler, Partner)

4:15-5:30pm – Panel and Discussion

Panel: Jody Chrastek, DNP., Janet Will, RN, Lynn Gruber, JD

5:30-6:30pm – Closing Remarks & Reception

Saturday, October 17th

7:30-8:15am – Continental breakfast

8:15-9:15am – Session 3 — The clinical dimensions of pediatric palliative care

(Keynote speaker: Hal Siden, MD, Canuck Place children’s hospice Moderator: Tamara Schafer, MBA)

9:15-10am – Panel & Discussion

(Panel: Scott Schwantes, MD, Naomi Goloff, MD,  Susan Sencer, MD)

10am-10:10am – Break

10:10-11:10am – Session 4 — The importance of spirituality and emotional support in pediatric palliative care.

(Keynote Speaker: Jan Aldridge, PhD, Tisha Moore, chaplain Moderator: Theresa Zimanske)

11:10-11:40pm – Panel & Discussion

(Panel: Ted Bowman, grief educator and trainer, Kaci Osenga, MD)

11:40-12pm – Next steps & Close