3rd Annual Pediatric Palliative Care Symposium
Woven Together: Care-Giving and Care-Receiving
The Crossroads of Caring for Another and Caring for Self
Thursday, September 28th, 2017 1:00-5:00 p.m. and
Friday, September 29th, 2017 8:00-12:00 a.m.
Life Source Conference Center, 2225 W River Rd N, Minneapolis, MN
Living with a life-limiting or life-threatening condition requires a wide circle of careers. It is not enough to empower and support a child with such a condition, siblings, parents, and even the family. Optimizing care and hope also requires attention to volunteer and professionals that are a part of the circles of care. If any “care-giver” is compromised in their well-being or ability to provide their best, the care of a person living with a life-limiting or life-threatening condition can be adversely affected.
In this symposium, perspectives and tools that support, promote, and extend resilience and hardiness for all care-givers will be presented, demonstrated, discussed, and expanded. Further, the intersections of care providers will be highlighted. Individual, family, and team-care will be addressed separately but as inextricably intertwined. If done well, all can benefit.
Kathie Kobler, MS, APN, PCNS-BC, CHPPN, FPCN is an advanced practice nurse with 32 years of experience caring for infants and children with serious illness. Kathie is APN Coordinator for Center for Fetal Care at Advocate Children’s Hospital. She is an invited professional speaker at local and national venues, and a published author re. perinatal/pediatric palliative care and bereavement issues, including co-author of the 2013 book, “Meaningful Moments: Ritual and Reflection when a Child Dies.” Kathie has served in leadership positions in national palliative care organizations, and is currently Co-Chair of the National Pediatric Hospice & Palliative Care Collaborative and a member of the 2017-2019 National Consensus Project Writing Committee for Community-Based Practice Guidelines for Quality Palliative Care. She is a 2014-2016 Jonas Nurse Leader Scholar, and a PhD Candidate at the University of Illinois at Chicago, with anticipated graduation of Fall, 2017. Kathie was named a 2016 Fellow in Palliative Care Nursing and received the 2017 Distinguished Career Award from the Hospice and Palliative Nurses Association.
Thursday, Sept. 28th:
12:30-1:00 pm – Registration
1-1:05 pm – Welcome from Crescent Cove
1:05-1:20 pm – An Experience of a Resource – Energy/Qigong
Experiential, Rhonda Battisto
1:20–1:45 pm – Toward Shared Meanings for Symposium:
Resiliency, Hardiness, Self and Other Care, Kathie Kobler and
1:45–2:30 pm – “I’ve looked at Both Sides Now”
Three Parent/Professionals – How do parents sustain their
own care? How do professionals sustain their own care?
Jeannie Goodspeed, Jill Wall and Natalie Wilson
2:30 pm – Integrative Art Therapy & Talk Therapy
Conversations, Karen Haeg and Bryan Kingsriter
2:50 pm – Who Tells Your Story? Integrating Narrative into
Self-Care Practices, Kathie Kobler
3:30 pm – Break, Stretching/Power of Relaxation Breathing,
3:50 pm – Honoring Meaningful Moments: Role of Ritual
in the Care of Children with Serious Illness, Kathie Kobler
4:50 pm – Open Forum and Table Conversations,
Ted Bowman and Kathie Kobler
5:30 pm – Please join us for a reception at Crescent Cove
4201 58th Ave. N., Brooklyn Center, MN
Friday, Sept. 29th:
8:00 am – Welcome from Crescent Cove
8:10-8:30 am – Breakfast with Mindfulness Exercise, Denise Mattes
8:30 am – Session 1
Cultivating Resilience: Personal, Team, Hospital and Hospice
ways of replenishing the well of resilience, Scott Schwantes
9:15 am – Session 2
Erosion of Resilience: Recognition of Different Types of Distress,
Grief, and Hope. Discussion of how to manage daily tasks and
care for a child facing a life limiting or threatening condition,
10:15 am – Break – Music and Movement,
Mark Burnett and Candace Linares
10:35 am – Session 3
Resiliency in Healthcare – perspectives from local
and international healthcare leaders, Jim Rice and Bob Bonar
11:00 am – Session 4
Creating a Sacred Space: Without and Within,
Rabbi Lynn Liberman and Rev. Frank Bennett
11:45 am – Summarizing the Symposium – Integrating Resiliency
Practices, Ted Bowman
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Minnesota Medical Association (MMA) through the joint providership of Gillette Children’s Specialty Healthcare and Crescent Cove. Gillette Children’s Specialty Healthcare is accredited by the MMA to provide continuing medical education for physicians.
Gillette designates this live educational activity for a maximum of 4.0 AMA PRA Category 1 Credits™ on September 28 and 3.0 AMA PRA Category 1 Credits™ on September 29. Physicians should only claim credit commensurate with the extent of their participation in the activity.
This activity is designed to meet the Minnesota Board of Nursing continuing education requirements for 4.6 contact hours on September 28 and 3.6 contact hours on September 29. It is the responsibility of the participant to determine if this program meets Minnesota Board of Nursing rules relating to mandatory continuing education provisions of the Minnesota Nurse Practice Act.
This activity is worth a maximum of 4.0 clock hours on September 28 and 3.0 clock hours on September 29. It is the responsibility of the individual to determine if this activity meets their professional requirements for continuing education credit.