A Haven of Joy, Connection, and Adventure for All Sibling Camp is one of the highlights of summer for not only the campers who attend, but also the staff, volunteers, and students who put the camp on. At 3:00 on the appointed day the kids arrived carload by carload, returning campers excitedly greeting staff and volunteers who they knew from previous years. New campers were a little less exuberant, but within the first hour began to know their fellow campers and counselors.  “Sibling camp ...More

It’s only natural that after 6 years of caring for children with shortened life expectancies that we serve a lot of families whose children have passed. Every Crescent Cove family is welcome to return to any of our events, to visit our Home and to remember their child with love. It was wonderful to reconnect with many of them at our 2024 Spring Fling, which took place at Crescent Cove this May. We welcome the family of an infant who passed away at Crescent Cove in February of this year, sayin...More

This month is the 6th anniversary of when Crescent Cove opened its doors. We went from hosting our very first respite stay that year, to serving more than 380 families today. Around the time we were opening, there was a family living not far from our Home who had no idea that one day, their son would qualify for Crescent Cove’s services. Jennie and Shane’s second son, Brady, was a typical 12-year-old boy at the time. He was on his school’s basketball team, loved reading, riding his bike, ...More

When Crescent Cove was selected to be the benefiting charity of Mustaches for Kids Twin Cities this year, we sent out a call for people to participate in growing mustaches to raise money for Crescent Cove. One of the people who answered that call was Mark M, a nursing assistant at Crescent Cove. “Working at Crescent Cove is not just a job for me, it’s a personal mission,” says Mark. Mark joined our team nearly five years ago and was inspired by his son, Isaac.  Isaac was born in 2008 wi...More

There are so many milestones in life, and at Crescent Cove we celebrate them all. We recently had the opportunity to celebrate the retirement of Karla V., who was our second employee and has worked at Crescent Cove for more than 8 years. Karla answered the call for an office manager/administrative position in 2015. She met with our founder, Katie Lindenfelser, in a storage closet converted into an office in St. Louis Park. This windowless, mismatched space did not impress Karla, but Katie’s p...More

Leap Day! The rarest of days, which only comes around once every four years. While this day may be a trick of a calendar, it is also Rare Disease Day, a globally coordinated movement to bring awareness to those diagnosed with a rare disease. A disease is considered rare when it affects fewer than 1 in 2,000 people. More than 300 million people around the globe are living with rare diseases, ones that often defy diagnosis or treatment. 70% of rare genetic diseases begin in childhood, and many of...More

At our gala this past January, Crescent Cove parents Amy and Andrew Gruber shared the story of their beloved son, Theo, who lived 53 days on Earth. He was born with a condition called Epidermolysis Bullosa or EB, a rare genetic disorder that causes skin to blister and tear with the slightest friction. Upon his birth, they were thrust immediately into the role of caregivers, providing hours of bandage changes, bathing, ointment application, and pain medications every day.  Within weeks it becam...More

From difficult times come ideas that sometimes have staying power. Crescent Cove’s Holiday Drive-Thru was one such idea. In the first few years that our Home was open, we hosted a holiday party inside the House for our families and kids. During the pandemic, we had to find a creative way to get families together while keeping everyone healthy and safe. We decided to try a drive-thru idea, having families stay in their cars and receive gifts while cruising up the long driveway to our Home.  ...More

“Any child old enough to love is old enough to mourn.” Dr. Alan D. Wolfelt, author of Companioning the Grieving Child, a Soulful Guide for Caregivers November 16 is Children’s Grief Awareness Day, a day to recognize that support can make all the difference in the life of a grieving child. One out of every 20 children will have a parent die before they graduate high school*, and that does not include those who experience the death of a sibling, a close grandparent, aunt or uncle, or friend...More

Recently, we said “so long for now” to a young adult who graduated from Crescent Cove’s services. Crescent Cove provides respite and hospice care to children and young adults ages 0-21. Since we care for children with shortened life expectancies, we rarely have young adults who age out of our program when they turn 22. This year, we had two who became “graduates” of Crescent Cove. Mari was just 16 years old when she came to Crescent Cove for the first time. Born with Spinal Muscular...More