As we celebrate this 4^th of July weekend we are reminded of our Freedom and Independence.  For most people, these rights are not necessarily something we notice and express gratitude for on a daily basis. For a family caring for a child with a life-threatening condition, however, freedom and independence are such a rarity that when given to them, it is cherished.  Our goal at Crescent Cove is to help our families experience these rights more often.

Respite care gives our families the freedom and independence to experience quality time with their family, without the worry of the medical needs of their ill child. So often parents are bombarded by constant clinical care, with little to no opportunity to enjoy the precious moments with their children.   Having a child with a shortened life expectancy also leaves families feeling alone and isolated. Far from a sense of independence, these families are dependent on so many factors that determine each step they take. The ever-changing medical and emotional needs of their family dictate the decisions they make on even a moment’s notice.  Imagine what it would feel like for these families to have someone taking that weight off their shoulder.  Imagine the freedom and independence they would feel when they can make a simple decision such as getting an ice cream, and know that they can actually accomplish that goal.

While we wait for our home to be built, Crescent Cove is already providing respite support to families.  This week, we sent four families to spend a four-day holiday weekend at Faith’s Lodge in Wisconsin. This facility provides a place where parents and families facing the serious illness or death of a child can retreat to reflect on the past, renew strength for the present, and build hope for the future.  We are also providing short mini-respite experiences through massage therapy, music therapy, spiritual care, and meals

The 4^th of July holiday reminds us of all that our country’s founders hoped for us. Crescent Cove will help to ensure that the rights of freedom and independence will be available to our families caring for a child with a shortened life expectancy.