2020 Pediatric Palliative Care Symposium Schedule

Friday, October 23, 2020 | 9 am - 12:30 pm

9:00 am | Log-on and Welcome

Moderator: Ted Bowman

9:10 am | Crescent Cove: A Safe Haven

Speakers: Kathryn Koehne, DNP, RN and Katy Glitsos

Crescent Cove provides respite care and end-of-life care for children with a shortened life expectancy, and supports the families who love that child. Our team will share who it is that Crescent Cove serves, what respite life looks like, and how we function. As part of this session, we will also share how, even during a pandemic, our team has continued to provide a joyful environment for children while reassuring parents of the high-quality care their kids receive at Crescent Cove.

10:10-10:15 am | Break

10:15 am | The Three C's in Relationships, Resources and Rituals: Communication, Culture and Concurrent Care

Speaker: Joan "Jody" Chrastek, RN, DNP, CHPN, FPCN

In this presentation, we will discuss how the three C's are important aspects of the conference themes of Relationship, Resources and Rituals. This presentation will include the importance of effective communication techniques with health care professionals, families and others. For example, concurrent care, which is an essential part of hospice care for children and a wonderful resource, is often confusing and misunderstood. It is important to understand and explain what concurrent care is and what it can provide. In all communications, it is essential to have cultural humility, an attitude of gentle curiosity and openness to learning from others who may see the world differently than you do will be discussed. This overview of important topics will also provide resources to access for further and deeper learnings in these areas.

11:15-11:20 am | Break

11:20 am | Meaning Making through Ritual and Ceremony

Speakers: Anne Murphy and Pam Klein, MSW LGSW

Rituals and ceremonies can mark passages in meaningful, heartfelt and creative ways.  Crescent Cove is committed to providing families the space, support and guidance during times of transition and death in a way that reflects the families values, beliefs and ethics.  Learn the basics of ceremony and ritual as well as some practical ideas and stories.  Hear some of the emotional, spiritual and physical needs of the families who chose to create ritual and ceremonies and how it transformed the way they grieve and relate to death.

12:20-12:30 pm | Review & Wrap-Up